Leveraging the Electronic Health Record to Assist in the Management of Patients With Complex Dermatological Conditions
An OurPractice Advisory Pilot for Patients With Epidermolysis Bullosa.
Hathaway JS, LeWitt TM, Chang H, Garzon MC, Morel KD, Levin LE
Pediatric DermatologyIn the feed 4 Sep 2026, issue 2026 Aug, added to PubMed 4 Sep 2026
Topics: Genetic skin diseasePractice, education & researchChildren
Abstract
Epidermolysis bullosa (EB) is a group of rare, fragile skin disorders that poses unique challenges. To support clinicians who lack familiarity with caring for patients with EB, we utilized a tool called an "OurPractice Advisory" (OPA) within Epic, our institution's electronic health record (EHR) platform. The OPA displays crucial resources for providers to assist with the management of patients with EB during an emergency department visit and/or hospitalization. The OPA includes practical guidance regarding wound care, supply procurement, consult recommendations, and complication prevention strategies. By leveraging an existing EHR tool, this initiative aims to provide immediate assistance to providers, enhance patient outcomes, and serve as a model for managing various complex conditions.
Abstract from PubMed
PMID 42696394 · DOI 10.1111/pde.70125